On the ethics forum at MSNBC and on bioethics.net blogs, Art Caplan, distinguished bioethicist and Director of the Center for Bioethics at U Penn, has posted a commentary on prayer and the medical treatment of children [Children's health can't be left to faith alone]. I urge you to read this comment and want to echo its sentiments here.
In March the news reported the deaths of two children as a result of parental withholding of care. There were, unfortunately, many other cases of parents outright killing their children, but what makes these particular two cases so incomprehensible is that they essentially were allowed to die painful deaths in the name of God.
Or, more specifically, their parents’ belief in God and His healing powers.
Ava Worthington was 15 months old. She died of bronchial pneumonia, a disease easily treated with antibiotics. Her parents essentially watched her die, praying over her as her lungs filled with fluid and she drowned in mucous and puss. Ava most likely experienced days of severe illness with absolutely no relief offered to her by those who are supposed to take care of her.
Madeline Neumann was 11 years old. She died from an easily treatable form of diabetes, suffering for a month with increasingly more severe symptoms while her parents watched and prayed.
In both cases the parents held strong religious convictions that modern medicine is not necessary, that prayer and God’s will are all that matter. That is fine for them, but it is not fine for their children.
Adults have the right to determine their own fate. In theory they have the mental capacity to make their own decisions, knowing the consequences of those decisions. Children do not. That is why it is the responsibility of the adult to take care of them and do what is right for them.
To deny your own children medical care because of your beliefs is ethically and morally wrong. To do what amounts to wilfull torture of a child in no way reflects an offering of faith to God. We have been gifted with reason and with reason we have crafted life-saving medical care. To wilfully ignore that is to reject every notion of what God means to those who believe in him. To throw up your hands when your child dies in front of you and say “oh well, God’s will” is an insult to God. There is no love for God, neighbor or self in purposefully allowing another human being to suffer a painful and preventable death.
If an adult decides out of faith to deny for themselves medical care that might save them, trusting instead to God’s will, that is fine. They have made that committment. They have that right. But children do not have the ability to make the same decisions. They may be able to memorize and recite the Lord’s Prayer, but show me a 15 month old that understands the nature of the Trinity and I will show you a room full of theologians who don’t. The conceptual understanding of what it means to live by faith is gifted and only possible when the brain gets to the point of being able to truly hear the message.
Letting your children die when the ability to save them is at your fingertips is murder. There is no other word for it. And it is wrong. No one should be allowed to die if we can help it, and especially not our children.
“A voice in Ramah was heard, great weeping and mourning; Rachel weeping for the children of her, and she would not be comforted, because they are not.” [Matthew 2:18/Jeremiah 31:15; from the Greek UBS 4th edition, Nestle-Aland 26th edition]